Thursday, August 14, 2025

State of the Schafer: in which there is more cancer (but also more mountains)

 If you follow me on Facebook or BlueSky, you might've seen that I've been posting pics from recent adventures in California's Sierra Nevada. The Sierra, of course, are the mountains that inspired the Whitefires in my Shattered Sigil trilogy, and oh gosh, how lovely it was to walk in them again. I do adore NZ's majestic Southern Alps, but the Sierra remain the mountains of my heart. There's just something about their jagged white granite silhouetted against indigo sky and reflected in turquoise lakes that never fails to exalt me and leave me in awe.

Our group rounding Royce Lake, high in the Sierra

And boy did I need some exaltation. Earlier this year, I got some unwelcome news from yet another biopsy. I've got more very early stage breast cancer lurking in the same breast that had the lumpectomy 2 years ago. Like last time, it's contained in the duct and therefore not considered invasive (yet), but as this is the 2nd time around, the doctors want to be more aggressive. All at once, I was looking at a mastectomy, and trying to decide between a plethora of options. Single? Double? Reconstruction or not?

I'd always assumed that if more cancer was found, I'd just tell the doctors to chop both breasts off. I've never felt that breasts define me as a woman. Nor do I care how feminine I look, or how I fill out clothes. (I pretty much live in t-shirts and hiking pants.) Yet I do care about functionality of my body, and that brought a stumbling block I hadn't previously considered. Mastectomy means losing most sensation from the area due to severed nerves, even if you have reconstruction - unless you go to one of a very few surgeons that offer "resensation" nerve grafting, which is still rather experimental and has a relatively low success rate. 

I found that sensation was actually important to me, and so I decided to do only a single mastectomy and keep the "healthy" breast, given that genetic testing found no evidence that I have any mutations relating to increased risk of cancer. That doesn't mean I don't have a bad gene lurking, since there's still plenty left for scientists to discover, but it makes it less likely. I'd learned that cancer-related decisions are all about weighing likelihoods and probabilities. There's no crystal ball, no way to obtain certainty about the future. As one doctor said to me, you just have to make the best decision you can with the information you have at the time. 

So. Given that I decided to keep the healthy breast, I found symmetry was also important to me - not because of looks, but due to function. I didn't want to worry about muscle imbalances. Yet I also didn't want implants - I've known too many women who've had a lot of trouble with them, everything from painful capsular contracture to autoimmune issues. That led me to considering DIEP flap reconstruction. This is where a skilled microsurgeon takes a big ol' chunk of your abdominal fat & skin, reshapes it, and essentially transplants it up to the breast area. When it works, it works really well. The fat is still you, meaning real living tissue; it's pretty much the same as the fat that used to make up the breast. The downside is that the transplanting turns the mastectomy into seriously major surgery, with correspondingly higher risks. It means ten hours or more under anaesthesia, and a long, tough recovery thanks to a hip-to-hip abdominal incision. 

The surgeons say I'm a good candidate. I'm "young" (in cancer terms, at least - I figure this is the last time in my life when I'll be told by multiple people how young I am!), and fit, and healthy apart from the abnormal cells lurking in my breast ducts. I've decided to go for DIEP, as it offers the chance of the best outcome. If I can slog my way up challenging passes in the Sierra, I can endure a tough recovery. (I hope!) 

Climbing sandy slippery terrain toward an unnamed pass we nicknamed "Mordor Pass"

Tomorrow is the big day. Single mastectomy plus immediate DIEP reconstruction is the plan. I'll be off work for two months to recover. Since I won't be able to do much exercise while healing, I figure it's a good opportunity to catch up on books, movies, and TV shows I haven't had time to enjoy. I've been asking friends for recommendations, and accumulated quite a list already, but I'm always open to more. If you have recs to share from the last few years, please do leave a comment or get in touch! 

And cross your fingers for me. If I'm honest, I'm pretty scared they'll find the cancer has turned invasive when they do the pathology. But that's part of the future I can't control. All I can do is take one step at a time, and hope I will one day enjoy more moments like this:

Loving life on top of Feather Pass



Saturday, May 17, 2025

State of the Schafer: Another Big Catch-up

 Once again, it's been a while. This time, my silence has mostly been due to work. In addition to being Head of Data Science at New Zealand's national weather forecast provider MetService, back in December I also took on the role of acting Head of Atmospheric Science. Double the people to look after, double the projects to run, and a steep learning curve, ooof! But it was really important for the atmospheric team to have someone advocating for them and ensuring their work gets visibility and appropriate priority - especially in these days of increasing threat from extreme rain events. My double role shouldn't last forever, as MetService will be merging into a new "earth sciences" institute that will also contain climate research center NIWA and geological science center GNS. But for now, there's lots to do and many trips to MetService and NIWA offices in Wellington. 

The supercomputer at NIWA where weather models are run. Yes, it takes a huge amount of electricity, but in NZ 88% of our electricity is now from renewable sources (hopefully soon to be even more, with offshore wind farms in development)

Working in the weather forecasting space, it has been deeply dismaying to see the gutting of NOAA and national weather service and other vital scientific organizations going on over in the US. (Among so many other dismaying things!) But...it's not exactly a surprise. The current administration was pretty plain about what they intended, and people voted for them anyway. Now the consequences of that vote will play out. My heart goes out to everyone who didn't vote for this future but will have to endure it regardless. On the science front, at least those of us in other countries can work to pick up the baton and keep moving forward. The ECMWF, for example, is doing terrific work in providing open data access and research platforms such as Anemoi (a framework for building machine learning weather models)

Enough about work, though. On the writing front, I have been chipping away at revisions on some short stories, and inching toward publication of The White Serpent. Inching here means creating an ebook and having a friend test it on a host of platforms (thank you, Lada!). Last step is finding a cover artist. I know, I know, I've been talking about finding an artist for ages...Dave Palumbo who did the art for the first three Shattered Sigil books is a bit too expensive to hire for a brand new piece for something self-published without the aid of a Kickstarter, so I just need to set aside the time to do some research and find someone in my budget range. (No, I won't be using AI. AI is awesome for weather modelling, but when it comes to art, I'd prefer to support a human artist.) 

I'm also still making time for outdoor adventures. It's so easy to get sucked into a spiral of doomscrolling and feel like there is nothing good going on anywhere. But even if the world's future turns out as bleak as many scientists fear, there's still beauty and wonder out there right now. Go out and enjoy it, because the world may well never look quite like this again. Here's a sampling of my own adventures of the past months:

Rock formations in the Whitsunday Islands, Australia

Snorkeling at the Great Barrier Reef - after all the recent bleaching events, there are no longer so many soft corals as I remember, but lots of hard corals and giant clams and fish remain

View of the Canadian Rockies from Revelstoke - the skiing was steep and excellent

The kiddo charging down his favorite Revelstoke run

We always forget to take family selfies while actually adventuring, so here's a city shot of all 3 of us, taken by a friend while we were in Vancouver

Back at home, the kiddo spent many summer days bodyboarding in the whitewater park on the Hawea River

Perfect dogwalking day at the lake

Veteran SFF authors Delia Sherman and Ellen Kushner stopped in Wanaka during their travels around New Zealand - it was great to spend time with them!

View of Lake Hawea from Breast Peak, which I hiked up as part of the "Hike for a Cure" fundraiser for breast cancer research

Autumn colours in Arrowtown - one of the few spots in NZ where you get a really vibrant display (due to non-native trees)

Celebrating my birthday with a hike to Lake Marian in Fiordland

Fiordland is full of waterfalls

On the way to Doubtful Sound

Doubtful Sound - I took about a million pictures but none of them do the scale justice


Misty mountain walking

First snow of the year on the peaks backing Lake Hawea

Evening view of Lake Wanaka from the track up Roy's Peak